n African Journal for Physical Health Education, Recreation and Dance - Palliative care nurses need concerning support of primary caregivers to people living with HIV/AIDS in Malawi : palliative and chronic care

Supplement 1
  • ISSN : 1117-4315


The primary interest in the current management of Human Immunodeficiency Virus (HIV) and Acquired Immune Deficiency Syndrome (AIDS) with Antiretroviral Therapy (ART) is to prolong the lives of People Living With HIV/AIDS (PLWHA). However, PLWHA still require care to improve their quality of life and productivity. Palliative care approach has been noted and advocated in improving the quality of life for PLWHA and is being provided at the clinics by nurses, however continuity of care is provided at home by primary caregivers. This has placed a paramount task of care on primary caregivers in most households affected by HIV/AIDS. Supporting primary caregivers is a key component to improving quality and continuity of care provided to PLWHA. This study explored the palliative care nurses need concerning support of primary caregivers to PLWHA in Malawi. Qualitative, contextual, descriptive and explorative research design involving a purposive sample of 15 nurses from three palliative care clinics in Lilongwe and Salima districts were utilized. Semi-structured interview guide was used to collect data from three focus groups and data were analyzed using Nvivo software package version 10. Palliative care nurses indicated that supporting primary caregivers was necessary. Evidence showed that meeting the training needs, resources and support of palliative care nurses including provision of guidelines would improve their confidence and quality of support provided to primary caregivers and achieve better quality of care to PLWHA.

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