n African Journal for Physical Health Education, Recreation and Dance - Caring for terminally ill HIV infected adolescents : the case of parental support in Vhembe district HIV/AIDS care programme

Supplement 1
  • ISSN : 1117-4315


The purpose of this study was to explore and describe the needs required for caring, support and challenges faced by the parents responsible for caring their HIV/AIDS infected adolescents. Exploratory and descriptive design was applied to purposively sample parents who were caring for their terminally ill HIV infected adolescents. A sample of 36 parents aged 40-70 years participated in six focus group discussions steered by an interview guide. Findings showed aspects that were detrimental and affecting the productivity and coping capacities of the parents caring for HIV/AIDS infected adolescents. Poor inadequate counselling and debriefings, lack of motivation and incentives was also revealed among the findings as well as inadequate monitoring visits by Primary Health Care (PHC) nurses to the affected families, lack of support groups to facilitate information sharing and encouraging one another. It was concluded by recommending that counselling and debriefings as well as the establishment of support groups which will afford the parents an opportunity to discuss and brainstorm the care giving challenges that impede their coping processes. With these findings, the researchers hoped this should be a platform of advocacy to make positive changes. Strategies to motivate the parents is a necessity, and provision of adequate care packages such as gloves, disposable napkins, and food parcels to be made available to parents from the social services.

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